The Dads of Disability book project addresses the relative scarcity of stories from and about the perspective of fathers whose children experience a disability. The full title is: Dads of Disability: Stories For, By, and About Fathers of Children That Experience Disability (and the Women Who Love Them)
You can read sample stories and a poetry contest winner in the Dads of Disability free preview download (updated with new content 13-Nov-2013).
The book and its blog will be a supportive place for fathers, their children (disabled or not), and female and male family members that support the fathers. The goal of the project is to be inclusive to men, women, and those of all ages and races with disabilities or without. The themes and perspectives of the pieces will be either by or about fathers. Please see the FAQ and Submission information for further clarification on the themes, points-of-view, and inclusiveness of this project.
How can you join this journey? Read the FAQ and Submission information through the menus above to learn about when the book is available or how you can submit an idea or essay. If you just want to be kept up to date about the book project status, fill out the form at the bottom of this page.
The Blog entries? Latest entries are at the right of this page and in the menu above.
About me and my son
About my son: Alexander is a wonderful, lucky boy who is loved by many. He has an interstitial deletion of the lower arm of chromosome 13. That means that some of his genetic material is missing between some of his other chromosomes. There’s no fancy name for this deletion like there are for more common rare genetic issues. Read that again, it is indeed what I meant — some rare genetic issues are more common than others, and the ones that are ultra-uncommon don’t even have names. The old doctor story states “there are less than 10 people diagnosed in the world with what your child has.” More about that too in the book, from a tiger-dad’s perspective.
Any way, before I get into more details, let me show you his picture. He was born in 1999 and remains very cute. Which has been one of his great assets, as I will explore in the book.
And doesn’t “look” disabled, does he? (That is a purposely charged sentence.) For those in the parents of disability community, I don’t want to dwell on the challenges, although it could be illuminating for the civilians. But I’ll leave the medical, developmental, behavioral, family, social, community, educational, and financial discussions to another time. And hopefully a lot more about that in the book from really unexpected places with unexpected themes.
Specifics are less important than the general issues that come up for me and that come up for other dads of children that experience disabilities.
This book is about father’s perspective, but involves women!
This book and blog are focused on the male perspective of fathering a child with a disability. That doesn’t mean “no women or girls allowed.” Far from it! The book will have essays “by, for, and about” fathers. Women will write some of them. Women will learn from some of them. And perhaps, men will learn more about how to better support moms of children with disabilities. I don’t yet know where we’ll be going with the final organization and content of the book, but I am looking forward seeing what happens. If you have any other questions, please read the FAQ page by clicking the link in the menu above.
Won’t you please join me on this journey?
Warm regards to all,
(My other non-Dad related marketing, elearning, and job search stuff can be found here.)
To keep in touch, fill out the form below. (See Submit a Story for submission info.)