I believe the word “compliance” is misapplied in our special education system. Please let me briefly explain my thoughts and perspectives about this opinion. This piece is based on observations of my 14 year-old child’s various school placements over the years. And it is enhanced and supported (and the examples I used are blended with) other opinions and anecdotes I have read and heard about, especially those I have encountered on some autistic adult advocacy blogs.

Compliance from Dictionary.com

Compliance definition from Dictionary.com

Three important notes: (i) Autism isn’t my son’s primary or only “diagnosis” issue in school. There are other complexities, although the impacts of the word “compliance” are still an issue. (ii) I don’t expect that everyone will agree with all aspects of this piece (iii.) I really think my son’s current placement is excellent and his teachers and staff know most of this stuff already for the most part and have reacted positively when I have brought up issues to them directly and with respect.

Compliance is a non-specific word

Much like the cloying phrase “good job” (well, at least it is when “good job” is expressed with an infantile sing-songy tone and no verbal specifics about what exactly was done well), the word “compliance” is similarly a non-specific.

An infantile, non-specific Good Job (a 'shortcut'):
A more appropriate, specific compliment said with respect (takes two extra seconds):

 
 
Similarly, I think “compliance” is a lazy shortcut term for something more important or more measurable or more relevant. “He was compliant today.” What does that mean? That he did what he was told to do because his spirit was broken and he went through the motions? That she did what she was asked to do because she understood why she needed to do something? That he was guided toward possible options and that staff and support folks helped him reach decent decisions about what to do or not to do?

If something was so, say it was so and what happened! It doesn’t take much longer at all.

Compliance is a term rarely used for typically development peers

Visualize your stereotype of a typically developing ninth grade high school student. In the example in my mind’s eye, she is in the honor society, a violin player, and on the swim team. Feel free to visualize your own example. Now, imagine that there was some issue at school with her (doesn’t matter what the issue is.) Can you imagine a report card coming home for this young lady with the sentence: “She is non-compliant 10% of the time.” What the heck would that mean? Or in a parent-teacher conference: “She is having compliance issues.”  Or: “It was a great quarter.  She was very compliant!”

See how odd that sounds? How inappropriate!

Compliance implies that conformity is of priority value

At the heart of the issue, for me at least, is that conformity is not of paramount importance. When I was in school, I was certainly a handful. I was certainly not a conformist. But I value an independent spirit. I want my child with complex special needs to be an independent spirit as much as possible too!

I really do get the differences

Let me be a pragmatist and let staff and specialists know that yes, I really do get it—that a youngster with severe behavioral and developmental challenges presents a completely different context than what I did in the 9th grade as a “typically developing” non-conformist student. Yes, a wide range of safety issues, educational challenges, language issues, socialization issues, school-expectation issues, and other issues are really different for students like my son then they were for me and for his current age-peers in a typical school setting. Things do have to be different for them and those that teach and care for our students who are not typically developing.

But different doesn’t have to include a measure of “compliance.”

Before this post turn into too much of a rant, I’ll cut myself off again and offer three specific examples that I think may illustrate just how easy it is to state and record things quickly that have much more value to wider teams (and family members) that need to understand goings-on at school when the students themselves can’t communicate detail.

Example Alternatives

Here are three examples I hope may address some of the issue I am pointing out.

Instead of saying “he was compliant when I observed him in class” say “I observed him participating with his peers and respecting their personal space with no inappropriate touching. In addition, he responded to the teacher’s academic and behavioral requests made of him, such as taking his turn at the Smartboard and ending the activity without a physical aggression when the lunchtime warning bell rang.” The latter tells a lot more about what he did in class and gives us a specific frame of reference to track improvements.

Instead of saying she was “compliant” in her bathroom reminders and training, say “When she was asked to try to go to the bathroom, she used a verbal response to indicate that she didn’t have to. Since she almost always responds negatively to verbal bathroom inquiries, and based on the timing of her last bathroom visits and accidents, we gently guided her to the bathroom and asked her to try for a minute anyway. She responded positively to this verbal re-iteration of guidance.” The latter tells us a lot more about her bathroom habits and expressive verbalization about said habits. And will help us come up with a plan to help her become better at expressing her need (or lack thereof) to use the bathroom and further reduce accidents.

Instead of saying “He was non-compliant when his group was asked to put on coat and gloves and head to the bus for a day trip” perhaps a more specific recording of issues would be of more value. For example, “He was really enjoying the morning activity prior to the bus trip. He really didn’t want to go on the bus trip, and did a good job verbalizing that, and clearly remembered a past trip when he was allowed to stay behind with a favorite staff member. Sometimes, we are able to accommodate and respect those requests. However, we didn’t have the staff to do so today, and explained that to him. So, we gave him some time to accept that, but we needed to help and encourage him to get on the bus anyway.”

Life is not about bending to the will of others. But students do need to listen.

Of course students of all kinds need to listen. For safety issues. For “rules” issues. For educational issues. But school is not a prison. Students do not need to be unbending robots. They didn’t lose rights by being in a special educational setting—any educational setting actually.

As we try to teach our students with severe special needs how to navigate the world, we need to meet each individual where they need to be met in helping them grow their independence to the best of their ability. But how can that happen if some teachers, some programs, some specialists are using “compliance” as a shortcut to the more difficult, sometimes more time consuming, but ultimately more important task of helping individuals thrive with as much independence as possible?

Warm regards,

Gary

And, as I say in the intro to my book, “If there is unintentional offense in this post, please let it start or continue a dialog, not end one!”

13 Comments

  1. I’m so glad you wrote this! My biggest worry is this example of compliance:

    Scary Harmful Person Who Wants To Hurt Kids: “Get in my car compliantly so I can steal you.”

    Well-Trained Compliant Good Special-Ed Kid: [Gets in car, because compliance is the appropriate response to a direct order from a person who acts like an authority figure.]

    My kids are two now and we’re late to day care almost every day because they found out it’s in their contract to say No all the time at this age. But I’d rather be late than set up the scenario above. Late every day forever. So let them practice No, I say. Thanks again.

    Love,
    Ibby

    • Ibby,

      Thanks for your thoughtful comment. Believe me, the “listening to an evil stranger” thing keeps me up at night too!

      But the day-to-day compliance stuff worries me more (at least statistically). I am pretty sure, the “compliance” as a verbal short-cut happens more than the (God forbid) issue of an abduction or other violent event due to “compliance as an evil order.” If that makes sense…

      Gary

  2. Great article. In addition to being to vague a statement to be useful, the act of always being “compliant” never leads to original thought, self advocacy, problem solving .I’m the mother of two Aspies who were usually “non-compliant” in the eyes of some adults. They marched to their own drummer, their own tune and have grown to be very creative self starters, able to ask questions and make their own decisions. And, yes, they are law abiding adults – because they love rules and boundaries that make sense.

  3. Wow. What an interesting perspective. I’m the mother of an 18yo daughter with moderate cerebral palsy and I’ve never thought about compliance that way. Following you on Bloglovin now! ) (Visiting from Love That Max LinkUp!)

  4. I never thought of myself as “compliant.” That word reminded me of slavery for some reason and now I understand why it does.

  5. Gary,

    While I agree with you regarding the educational environment, my greatest fear as the father of an autistic boy is that in the real world he will encounter a poorly trained police officer with a gun who is not shy to use it.
    Compliance has many benefits…think about it.

    Nate

    • Nate,

      Don’t let your fears override your son’s need to self advocate. Both of my kids always carried cards that state their diagnosis , alerts and immediate needs- plus my contact info, until they were able to 1) either verbally explain to an authority or 2) call me immediately. In addition, I always gave a heads up to my local PD when we moved and encouraged their first responders and staff to take a course about dealing with children and adults with developmental disabilities. They were happy to do so.Most abuse of this population is not at the hands of unfamiliar authorities – but at the hands of known acquaintances or authority figures.

  6. Gayle,

    That’s great…

    My son can’t self advocate. He’s non verbal with only my hope of that changing.

    You overestimate the willingness of most officers to take the time or effort to deal with a non verbal young adult that ignores them. My son is still a child so this is not a concern right now. I’m worried about when I’m not there.

    I’m older, and lived in a time and place when a deaf mute was shot dead for reaching for that same card your children carry. It’s tough to overcome experience. Ill continue to fear reality.

    I don’t want this conversation to take this direction, so I’ll agree to disagree.

    Carry on.

    • Have you considered teaching your son AAC or sign language? Neither is shown to delay speech progression in autistic kids, and both give the kid more options for communication. I use AAC when I’m having a bad word day, and for a while when I was a kid, I communicated almost exclusively by AAC at school for a few years because of speech impediment and severe anxiety due to bullying making it too hard to speak.

      Please don’t write off the possibility of your son learning to communicate because he can’t communicate typically right now – there are a lot of cases of autistic people who cannot speak at all (Carly Fleischmann, Henry Frost, Ido Kedar) or can speak unreliably (Emma Zurcher, Larry Bissonnette, Tracy Thresher) who communicate far more effectively with AAC than they ever could with speech.

    • Nate–

      Thank you for raising these issues, because they are also serious safety concerns– and are more so for males than females, more so for ethnic minorities than white people, and so on. This is something I struggle with a lot when I work with profoundly autistic children– what puts them at most risk, and why. The reality is that these children– and adults– are very much at risk. Sadly, these tragedies still happen all too often– authorities respond with violence to all kinds of people with disabilities.

      Compliance training reduces the risk in some cases, but not in all– and sometimes, cops and other authorities will respond even worse to someone who acts almost “normal” than someone who is very obviously disabled. As autism awareness grows, one of the few positive outcomes is that, for example, a lot more police now know that someone flapping their hands is likely to be autistic. Whether they know what to do with an autistic person is another issue.

      Gayle makes several good points: your son is, sadly, at least as much at risk from caregivers as strangers; outreach to the community can help make your son safer (depends on the community and your resources, of course); and self-advocacy doesn’t have to be verbal.

      Another important message to take away, though, is that we need to work on changing the world at least as much as we work on changing our kids. Some communities now have very thorough training for their police force on how to recognize and respond to mentally ill people, for example, and those programs have reduced deaths and arrests significantly. Special needs classrooms are coming under better surveillance. Community support systems are being put in place– adult “buddy systems” that pair disabled and non-disabled people up for things like shopping trips, group homes (not all of which are good, of course), and so on.

      In short, I think there’s a lot the rest of us can do to make sure that there are support systems in place to help your son and others like him live as safely and independently as possible when they grow up.

      And to everyone else reading this: I think it is the moral duty of eeryone who knows and cares about autism to work on building such a future.

  7. This. So very much this. Thank you.

  8. @restless hands…

    thank you for ‘getting’ where I was coming from. I don’t want our kids to be enslaved. I want them to be safe…from predators and poorly trained ‘public servants’.