I am a father, the curator and author of Dads of Disability, and a marketing guy. For general contact information, please email me at email@example.com Check out the links in the menu above to see excerpts and links to reviews of the book and information on how to buy paper and ebook copies. (The home page has a link for extensive free samples too.)
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About my son: Alexander is a wonderful, lucky boy who is loved by many. He has an interstitial deletion of the lower arm of chromosome 13. That means that some of his genetic material is missing between some of his other chromosomes. There’s no fancy name for this deletion like there are for more common rare genetic issues. Read that again, it is indeed what I meant — some rare genetic issues are more common than others, and the ones that are ultra-uncommon don’t even have names.
This book contains 41 essays and poems written by all kinds of men and women. They are powerful, but not saccharine. They are moving, but not over emotional. They are honest, and intended to foster discussion between and among family members and care circles who may not have ever truly considered the father’s perspective.